Well, yesterday wasn’t quite as crap as we thought it would be. Being in Brum again wasn’t easy, but we saw the cardiologist and he had a good look at Campbell. As Leigh’s Disease means Campbell’s energy production is poor, his heart needs to be checked regularly. After the brain, the heart is the organ that uses the most energy – Campbell’s condition can lead to the heart muscle becoming thicker or weaker because it isn’t being used properly. So we were anxious – you can’t mess about with your heart. But Campbell’s heart was fine. All working well and no unnatural changes. Not unless you count the Scottish and English flags jostling for position.
Whilst we were there the cardiologists arranged for us to speak to the Metabolic Team as we haven’t seen them since we left the hospital in April. The cardiologists moved us into “The Cliff Richard Family Room” to wait for them – UhHuhHuh – which provided a bit of light relief. Never thought we’d sit on a sofa paid for by fans of The Living Doll. The metabolic doctor came down to talk over Campbell’s progress and they seemed pleased with how he is doing. Campbell seemed very poorly when we were last in Birmingham and the doctors prepared us for a quick deterioration. However, he’s a fighter – he’s thrived and developed since we came home, and his progress was clear for the doctor to see. The doctor did a bit of patting and squeezing (of Campbell!) - it’s impossible to resist grabbing Campbell’s thunder thighs – and when he left he seemed happy with how things are going. So yesterday’s appointment went well.
We had a lovely treat when we came home. Our friends Lesley and Joe Gray came for a visit. Readers of the blog will remember that Joe donated a signed Quins shirt and ball to auction off for the charity, and he’s been a regular tweeter about the Trust. We really wanted to meet him in the flesh and it was a nice way to end the day yesterday. He came to our house with his mum and sat and had cuddles with Campbell – under Lesley’ strict supervision, he even fed him! It was great.
We have some important announcments about Joe’s involvement in the charity, which we will make in the next few days. Joe will be part of our future plans and we’re so grateful for his support. Check back on the blog next week to find out more.
Quiet weekend ahead. We were going to go to visit the Pocketts in Cheltenham but cousin Charlie is a bit poorly. So we’ll sort the house instead and try to sort through the kids toys. Would be nice if Holly could see her carpet for a change.
Have a good day.
Love Bekki and Mark xx