Morning all – Friday shout out to a pair of epic Trust supporters who are raising funds for our charity by…drum roll…shaving their head and having a chest wax! yikes!
Alex Gardner-Wilce and his brother are undertaking this bonkers challenge on 6th August at the Revive Hair Salon in Stroud – thank you very much, lads! You can read more on their Just Giving page – good luck to them!
Well, the kids have broken up for summer and the countdown has begun – 6 weeks to go until the Trust’s Annual Golf Day! we can’t believe this will be the 6th one we’ve held – we’ve been so lucky to have the support of fabulous golfers and players, and everyone who comes along to make the day go so well.
Here’s a reminder of the golf packages available (click on the image to make it bigger):
The event will be held at Naunton Downs Golf Course again, which really does feel like home. It’s a beautiful course and we love being there.
If you’d like to join us for a fantastic day, just drop Chris a line. He’s the organiser extraordinaire and the wearer of funky golf trousers. email@example.com
Hope to see you there!
Happy Birthday NHS! You wonderful old thing – you’ve treated, comforted, and inspired so many of us. Many of us wouldn’t be here without you, many of us wouldn’t be enjoying extra time with our families. We’re so lucky to have you and we need to do everything we can to keep you safe.
To the men and women who work in the NHS – you are all incredible. You humble us with your dedication and commitment. Thank you to all of those involved in Campbell’s care – you kept the dollop pain-free, able to enjoy time with his brother and sister, and gifted him to us for that short time. We’ll be eternally grateful.
Long Live the NHS xxx
Big thanks on this hot and sunny day to Paul who, last weekend, cycled 100 miles between Windsor and Bath in aid of the Trust. Can’t have been easy in the heat – hope you took plenty of water and used suncream, Paul!
We’re very grateful for your efforts – fundraisers like this are how we keep the wheels of our charity turning. So, if you’re thinking about undertaking a physical challenge this summer – be it a cycle, a run, a swim, a walk – please think of us. We’re so appreciative of the support.
Check out Paul’s Just Giving page and donate if you fancy. Many thanks xx
An update on the Year of Half Marathon’s Challenge (Bekki’s challenge of running 12 half-marathons in 2018) – Saturday saw her run her 6th Half of the year round Holme Pierrepont Lake in Nottingham. That was where she ran her first Half of the year but Saturday’s weather was much kinder, the wind was calmer, and she ran a much faster time.
She had to run 4 and a bit times round the lake to reach 13 miles and, with every lap, Campbell’s brother and sisters gave her a Trust wristband. A lovely touch and a real motivation.
6 done, 6 more to go!
Read more and, if you can, throw a few pennies into the pot at the Just Giving link below. The funds raised from this challenge goes towards the Trust’s work and really does make a difference to children living with metabolic conditions. Thank you.
Love Bekki and Mark xx
We’re delighted to bring you news about the Trust’s amazing Annual Golf Day, which takes place this year on Friday 24th August. As ever, it will be held at the beautiful Naunton Downs Golf Course in Cheltenham – the place really has started to feel like home over the last six years and we love going back there.
Golf packages have been announced – do you fancy joining us and seeing if you can knock last year’s winning team, The Cinderella Boys, off their perch? You may have a hard task as the lads had fought for 5 years to win and were a bit blubby at their success…aaahhhh…
So, fancy coming along? it’s going to be another brilliant day, we’ve ordered sunshine, there’ll be the usual evening entertainment of raffles, auctions, and witty banter from Campbell’s Uncle Chris (but don’t let this put you off). The Golf Day continues to be the highlight of our fundraising year and Chris and Claire put in so much work to make it a success – come and join us!
Packages are below. Just click on the image to make it bigger if you can’t read it all and email firstname.lastname@example.org if you’re interested.
Love Bekki and Mark xx
Change to Grant Scheme – this brings us on to a change we’ve had to make to our application system. We’re a very small charity, run by a group of volunteers, and we have been incredibly well supported by an amazing group of fundraisers. We simply couldn’t do what we do without you wonderful cake bakers, cyclists, runners, crafters, golfers…Over the past 6 years we’ve given out almost 1000 grants to eligible children and raised over £100,000. Just brilliant.
However, due to an increased number of applications and limited funds, we’ve had to make a change. From 25th May, families will be able to apply for 2 grants every 12 months. Unfortunately we will no longer be able to accept multiple applications from families with more than one child with a metabolic condition. A maximum of two grants per family will be awarded every 12 months. The Emergency Grant falls outside of this – families can apply for an Emergency Grant if a need arises.
We hope this change will be temporary and we’ll revisit it in the future. We’ve been able to support lots of children and parents over the years and we want to keep on doing so.
Love Bekki and Mark xx